Shiloh Pepin of Maine, who was born with the rare condition sirenomelia, has died.
Portland, Maine (WiredPRNews.com) – A ten year old girl living with a rare condition referred to as mermaid syndrome has passed away. As reported by the Associated Press (AP), Shiloh Pepin, who inspired many nationwide after sharing her story about living with the rare disease sirenomelia, died Friday at Maine Medical Center.
As noted by the AP, Shiloh was born with only one kidney, and without colon or genital organs. Her legs were also fused beginning at the waist as a result of her condition. She and her family publicly shared her story on nationally aired programs such as “The Oprah Winfrey Show.”
Maureen King, chairwoman of the Kennebunkport Consolidated School’s regional district, is quoted by the AP as stating of the fifth-grader’s influence at her school, “She was such a shining personality in that building.”
Lydia Dawley, a 12 year-old girl living with cerebral palsy, is further quoted in the report as writing to Shiloh on Facebook, “You have a great personality I wish you lived close so we could be friends and hang out. You opened my eyes because you are so brave.”
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